What is the ePBI?

ePBI is an instrument for dermatological patients and their physicians based on the Patient Benefit Index (PBI).

The PBI is used in experimental dermatology to evaluate the efficacy and safety of drugs used for the treatment of psoriasis, while patient reported needs and benefits are collected. It can also be gathered for quality assurance and shared decision making. ePBI is available as a mobile application for Android and iOS devices, as well as a web-based online calculator.

Assessing the ePBI

Before treatment the patient completes the Patient Needs Questionnaire (PNQ) and after starting a treatment - the Patient Benefit Questionnaire (PBQ). A score is then assigned to each answer with which the final index (PBI) can be calculated.

The index range is between 0 (no patient relevant benefit) and 4 (maximum patient relevant benefit).

The ePBI score

1) Importance of treatment goals

With the help of the following questions, we’d like to know how important the below mentioned goals are to you personally in the current treatment.

For each of the following statements, please mark how important this treatment goal is to you.  If a statement does not apply to you, e.g. because you do not have pain, please mark “does not apply to me“.

2) Treatment benefits

Please fill in the type of treatment for skin disease that you are currently undergoing (or which you underwent last):

Treatment:   _____________________________   Since when?:   _____________________

O No treatment of skin disease over the last 12 months (→ please continue on the next page!)

3) Treatment benefits

Please mark for each of the following statements how well the goals of the current treatment have already been met and how beneficial the treatment has been. If a statement did not apply to you, e.g. because you had no pain, please mark “did not apply to me”.

4) Calculation PBI

5) View of results (example)

Following you can find the versions of the PBI

Endpoint Model: Treatment of Disease X

Food and Drug Administration. Guidance for industry – Patient-Reported Outcome Measures: Use in medical product development to support labeling claims. US Food and Drug administration website, 2009 [cited 2017]

About Patient Reported Outcomes

“A PRO is any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.”

“Use of a PRO instrument is advised when measuring a concept best known by the patient or best measured from the patient perspective. […] PRO instrument adequacy depends on its role and relationships with other clinical trial endpoints as depicted in the endpoint model.”

Features

Easy to use

Its visual and interactive design ensures clear and easy understanding of the questionnaire, no matter if you are a doctor or a patient.

Quick calculations

Save time with our online tool. Anyone can quickly fill in the form and get their PBI score without doing any calculations.

Result feedback

A score is not just a plain number. Find out what your PBI score actually means alongside other values.

Multilingual

Using PBI is a standard procedure for anyone, so choose your preferred language to fill in the information and forget about language barriers.

Responsive and multi-device

Your ePBI is always a few touches away, available on desktop, tablet, phone and other devices.

GO PAPERLESS

Keep it green! Forget about wasting paper and store all your patient data in an online platform and share your results via e-mail.

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